Lynda is doing much better. She was able to go to school with out wet wraps on Thursday.
Now our friend Gage is in the Ottumwa Courier newspaper select this link to see the story:
Click Here
Courtney said in our weekly e-mails that people are now contacting her to help with a fundraiser to get Gage to National Jewish. This is very exciting news!
God is wonderful!
Friday, May 30, 2008
Thursday, May 22, 2008
Wet wraps
Lynda's skin has decided to flare we have been wet wrapping every night. Today she went to school in wet wraps. She was not very excited about this at all. Her face is our biggest concern, it is red and it is swollen. We do wet wrap her face at night. We will most likely have to start wet wrapping her face during the day.
Last night brought back many memories that I hoped I would never have to live again. Lynda did not want to get into the bath tub, because she knew that the water would burn her skin. She was crying and and screaming no mommy it will burn, then she started frantically scratching her legs, arms, and stomach.
When someone has eczema there are many little cuts and scraps that we can see and many that we can not see. The water will get into those openings and it will burn or sting.
I remembered that Beth Ann at National Jewish gave Lynda a squirt bottle and said you can squirt me with one hand, while I hold the other hand. That way Lynda would not be able to scratch at her skin and cause any more damage, and it would allow her to calm down and let the water heal her skin.
After our 20 minute bath, it was time to get lotioned up and wet wraps on. Then to the rocking chair we go to sing songs, wrapped in a warm blanket from the dryer.
She fell asleep and did not wake until morning.
I hope and pray that this latest flare will pass quickly. Our biggest fear is that she will pick up a skin infection while at school or daycare. We love our friends at the hospital but we do not want to see them anytime soon.
If you are living with someone or know someone who has eczema remember that we must provide them compassion because they must take one day at a time, and sometimes we must take every hour or every minute at a time we just can't control what our bodies are going to do when it comes in contact with a eczema trigger.
Last night brought back many memories that I hoped I would never have to live again. Lynda did not want to get into the bath tub, because she knew that the water would burn her skin. She was crying and and screaming no mommy it will burn, then she started frantically scratching her legs, arms, and stomach.
When someone has eczema there are many little cuts and scraps that we can see and many that we can not see. The water will get into those openings and it will burn or sting.
I remembered that Beth Ann at National Jewish gave Lynda a squirt bottle and said you can squirt me with one hand, while I hold the other hand. That way Lynda would not be able to scratch at her skin and cause any more damage, and it would allow her to calm down and let the water heal her skin.
After our 20 minute bath, it was time to get lotioned up and wet wraps on. Then to the rocking chair we go to sing songs, wrapped in a warm blanket from the dryer.
She fell asleep and did not wake until morning.
I hope and pray that this latest flare will pass quickly. Our biggest fear is that she will pick up a skin infection while at school or daycare. We love our friends at the hospital but we do not want to see them anytime soon.
If you are living with someone or know someone who has eczema remember that we must provide them compassion because they must take one day at a time, and sometimes we must take every hour or every minute at a time we just can't control what our bodies are going to do when it comes in contact with a eczema trigger.
Monday, May 12, 2008
New Story on Local Toddler with Food Allergies
Yesterday someone was kind enough to alert us to a story on KWWL News 7 about a toddler in Cedar Falls dealing with food allergies and they did a very nice story on this family. Check out the story on the KWWL website HERE! It was a well done story and resonated home with us here at Taylor central. We are very glad to see these issues get more and more attention. Knowledge is power and may save a life! Laurie met today with representatives at the Cedar Rapids Kernels to talk about the upcoming allergy free game (They will not be selling any peanuts at the game on April 29th!) We hope you all go out and support them for this wonderful event. A special thank you to the Kernels for making this event safer for those with food allergies! Hope you are all having a great week.
The Taylor's
Sunday, May 11, 2008
Spring is here! Well sort of.......
According to the calendar is it spring (and Callie's nose) and the pollen is flying. The temperature is not though, it was a very cold and rainy mothers day here is Iowa. The forecast is for rain for the next week and we are hoping for some dry weather. We are planting a Lynda friendly garden this year so we can maximize our food dollar during the summer. Matt has been been doing ok with his allergies this spring so far and Lynda has kept herself out of the hospital (knock on wood). We painted the girls room Pink & Purple upon request of the occupants of said room. Lynda is also graduating from Pre-School this week! Her teacher says she is doing well and we are preparing the kindergarten staff for what they are in for. We did a dry run in April with a visit day and they had a big list of things they need to make sure they are covered for. Matt has decided to continue with football next fall so Friday nights will be fun at our house. And Maybe a bonfire or two after the varsity games come Sept. Iowa has a bill going to the house and senate on how to handle kids with food allergies when they are in the care of the school. It is very similar to the Sabrina's law passed in Canada. We are very excited about the prospect of this passing. Have a great week everyone. We love hearing from you all!
The Taylor's
The Taylor's
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